South Florida Fragile X Clinic, University of Miami
The South Florida Fragile X Clinic (SFFXC) was established in 2009 and is located at the University of Miami Miller School of Medicine in the Mailman Center for Child Development. The SFFXC is one of 26 clinics located across the United States and Canada, associated with the National Fragile X Clinical and Research Consortium, a project from the National Fragile X Foundation. It is the only bilingual Fragile X clinic in the United States. This state of the art clinic provides individuals and families affected by fragile X with comprehensive care and treatment supported by the latest medical, educational, and research knowledge available.
The multidisciplinary team is led by geneticist, Dr. Deborah Barbouth, and coordinated by genetic counselor, Rena Pressman. The clinic is also staffed by a developmental pediatrician, psychologist, educational specialist, audiologist, and research assistant, all with extensive experience in Fragile X Syndrome and child development.
Miami, FL